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| I have had fibromyalgia for 30 years now - and was dx. long before the physicians accepted its existence or settled on today's 'popular' name. The first dx. I was given was neurofibromyositis, and for anyone who knows a little medical or Latin, that basically interprets to 'nerves - fibers - pain', and that does not even begin to explain the disease as it is as multi-faceted as one of those mirror balls that hung from the ceiling and revolved at our 'proms'. Like the orb, it 'reflects' in many parts of the body, and in the mind.
I don't have a lot of 'fog' days, but when I do, I do not even try to do anything responsible, and I can go back into my book and know the chapters that I re-edited last on a 'fog' day. Like the author of an article from *Rest Ministries, I used to take care of the checkbook, and had a responsible job as an Emergency Room account coordinator - I did everything from coding to collections, which involved interpreting the doctors' handwriting to 'code' each procedure he performed on a patient, along with the proper dx. for each and every one - and accident victims almost always had multiple injuries, thus multiple procedures and diagnosis. My doctors trusted me enough to allow me free rein with the account - changing fees, accepting assignment, etc., and under my care, this account went from being a 'tax write-off' to the major 'enterprise' in their portfolios. I had fms when I had this account but the 'fog' has not quite settled in - now it has, as does many things that worsen with age, and while I am used to living in the corona of constant pain, I am not used to living in the 'fog'. Now, if you were with me when I had a 'fog' day, you might or might not notice - however, I will try to keep the conversation 'light' and non-technical since I literally cannot 'think'! Surely, you have experienced that 'fog' between sleep and awake - when you cannot even respond if the telephone rings - where is the phone? Which button do I press? Well, its like that - and I find that I am isolating myself more and more as I never know when this will occur - it does not give any warning, the weatherman cannot predict it, and it is even more temperamental than the weather! However, I can still hide it - and even Dick doesn't know when I am in 'the fog'. At first, I was terrified I was getting Alzheimer's, although this disease is not prevalent in our family, but all of the tests came back negative, and with more research, I learned about 'the fog'. So, understand when I might not be as 'sharp' as I should be - or might not 'comprehend' exactly what you are writing - or I to you - it might or might not be 'the fog', but usually it will. Then again I might just be distracted since it has become more difficult to concentrate on the two, even three, or four things I used to be able to handle at one time, like watching t.v. and reading a book, or listening to four children at a time, and 'knowing' what they needed even before they did! Its time I shared this... I have not even told my husband about it - but then again, he probably has not even noticed! Now, I know that mouse is around here somewhere... Written by Diane Stark Sanfilippo Copyright July |
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| PAGE BY SHY |
